Builds Project ToyLET (PICS) (1 Viewer)

[Radd Cruisers]

Kooool, like the balistic stuff.








Kuddos on your moral, this is the first thread I look to when I am on mud.

Will follow your build and journey to wellness.

Rob

 

[tehcruiser]

I just read the thread, and you are doing an amazing job, and got a great built. I'm sorry to hear of all the pains you are going through, it really puts in perspective what we should value in life and what we can whine about.
You are a true warrior for not giving up, and putting up such a fight, keeping up the morale, and still trying to maintain some quality of life in this trials. I will be praying for you and your family. God bless.

p.s. I think the ram horns are going to work great, plus you will probably get better torque too. I kinda winced a little when I read that you bought the headers.

 

[4alarm]

Thank God, I got some relief today. They were able to drain 2 1/4 liters of fluid from my abdomen today. It wasn't really painful. I felt a little stick when they poked me for the lidicain, then a pinch when they pushed through the peritonial lining. They had to do it 3 times before they got it to drain. First time the catheter kinked and the 2nd time it got clogged. 3rd time was the charm. My abdomen looks much better, I can actually see where my belly button should be. I have a bit of a valley across my abdomen when I lay down. Much less pressure, hopefully tomorrow the pain (that I've been having in my side) will go away. It already feels a little better tonight. I've been soaking through the bandages though. It looks like the fluid from the adema has found a route out (through the needle hole). This fluid is different than what they pulled out of my abdomen. This fluid is in the outer tissue. I guess the more it drains, the better it is.

After the paracentisis I had my CT scan. I should hear the results in the next day or two. This is the next step to begin the new treatment.

Thanks again for all the prayers. I can't tell you how much I appreciate it.

 

[lulo]

Thank God, I got some relief today. They were able to drain 2 1/4 liters of fluid from my abdomen today. It wasn't really painful. I felt a little stick when they poked me for the lidicain, then a pinch when they pushed through the peritonial lining. They had to do it 3 times before they got it to drain. First time the catheter kinked and the 2nd time it got clogged. 3rd time was the charm. My abdomen looks much better, I can actually see where my belly button should be. I have a bit of a valley across my abdomen when I lay down. Much less pressure, hopefully tomorrow the pain (that I've been having in my side) will go away. It already feels a little better tonight. I've been soaking through the bandages though. It looks like the fluid from the adema has found a route out (through the needle hole). This fluid is different than what they pulled out of my abdomen. This fluid is in the outer tissue. I guess the more it drains, the better it is.

After the paracentisis I had my CT scan. I should hear the results in the next day or two. This is the next step to begin the new treatment.

Thanks again for all the prayers. I can't tell you how much I appreciate it.

OK! very good mate!

Keep Going

God bless you...

 

[slow91fj90]

Hang in there buddy!!

Oh and what a super cool build.

 

[LCOwner]

Hang in there bro. AZ wheelin season is going to kick in to gear and you need to be ready for it.

 

[jedrattle]

Nice rig!! Good luck and prayers to you!!

 

[nspctr1]

God Speed from TX.

 

[4alarm]

After some hassles from the California Doc's office, I finally got everything taken care of to start the new treatment. To keep this short, lets just say I had to make a few trips out there to get all the paperwork, tests, and scans done. I finally got my first treatment of the new drug last week.

I've been having the side pains again and I'm back on the pain killers (3 times a day). Today I met with my Tucson doc for my monthly exam. I showed him a new lump I found on the right side of my ribs near the lump I had found a month, or so, ago. This new lump felt harder like it was bone. He examined the area and said that there are actually 2 new lumps and he said it wasn't bone, but felt like they are attached to the ribs. He feels that they are tumors based on how they physically felt. Best thing we can do is hope that this new treatment will be effective in either getting rid of them, or keep them from growing. They are getting a little painful when I lay on my right side. Every once in a while it feels like needle pokes.

Next week I'm out there for 3 days because my scan is on Monday and my treatment is on Wednesday. It was more expensive for me to fly home and come back, so I'm just going to stay the extra day. Maybe I'll actually get out of the hotel room and drive down the street to the beach. I think I'm about a mile from the beach each time I go out there and I still haven't been down there. Either that or maybe I'll find one of those go-kart tracks and get a few laps in.

Then I'll be going out for day trips every other week after that. I'll have PET scans here and there that will require extra trips, but those should be more spread out. Maybe I should just move to California. I think I could rent a loft apartment for about what I pay for my mortgage here.

Now the really bad news....

These trips to California are expensive. I'm doing everything I can to keep the costs down, but there is only so much that can be done. Credit cards balances are going up and with no end in sight to these treatments, I really don't have any other options. I'm going to have to sell the FJ40. I really didn't feel like I could sell it after all the volunteer work that went into it, but everyone understands and they've given their blessings for me to sell it. There is a guy coming on Saturday to look at it and he seems like he's already sold on it, so I think it'll will be going to a new home this weekend.

 

[Tapage]

Damn dude .. tha's notices are killing me .. that's not fair ..

 

[SLOonTheGo]

I am really sorry to hear about you having to sell the 40. But, I do understand your situation and sympathize. You will continue to remain in my prayers man.

Best of luck on the treatment I hope that it helps you pull through this. We are all pulling for you.

Jon

 

[SHREG]

Sorry to hear of your troubles. I will keep you in my prayers.

On a side note, I have a $300 flight voucher i received for free. its for NWA. Your welcome to it. PM me if interested.

Good luck, stay strong.

 

[lulo]

Keep going JOSH!!!

"Impossible is nothing"

 

[marting]

Godspeed..

fj's can be replaced

 

[4alarm]

Thanks again for all the prayers. I still have it, they want to make sure it will pass emissions (no emissions where I live) in Tucson, so I'll take it up there at the end of the week so they can have it tested. I'll be in Santa Monica tomorrow through Wednesday. I have nothing to do on Tuesday in between my scan on Monday and treatment on Wednesday....Can anyone recommend something fun I could do in the area? I looked for a Kart track but I didn't find anything that I didn't have to drive an hour to get to.

SHREG: I appreciate the offer, but NWA and it's partners don't fly from Tucson to LA.

 

[Mendocino]

Josh,

PM sent.

 

[4alarm]

They screwed up again so I spent 2 extra days out there. I don't understand how a doctors office can operate like they do. My scan was Monday and my treatment was supposed to be on Wednesday. I did the math and it was cheaper for me to stay in Santa Monica between the scan and treatment rather than fly in and out each day. The scan on Monday went smoothly and afterwards I went into the Sarcoma Center to get some blood work done so I could get my next round of treatment on Wednesday. They finished what they needed to do, but failed to tell me they were done and let me just sit there for about an hour before asking me why I was still sitting there. It's one big open room and they had passed by me I don't know how many times. Was it so hard to say "that's all for today"? I clarified that I didn't need to do anything else until Wednesday and that I could come in first thing when they opened to the start treatment. They told me that was it and that they would get me in and out Wednesday morning so I could get home to my family.

So Tuesday I went down to the 3rd St. Promenade to catch a movie (couldn't think of anything else to do). I had a bit of time to kill so I walked around and found a cool toy store that had LOTS of Star Wars toys. They had a few really cool vintage toys, but money is tight so I had to restrain myself. I went in first thing Wednesday morning (first one there), got my weight, and sat down in one of the chairs. After about 15 minutes they came around to check my vitals and accessed my port-a-cath and drew some blood. After another 20 minutes or so I heard them ask if it was OK to start me. I heard the head nurse say no and that I need to talk to the doctor. I asked, across the room, if there was a problem with my PET scan from Monday and she said "yes it wasn't good". So I figured that there had been growth since my first treatment and that they were not going to let me continue. The doctor came in and walked past me several times. I asked one of the nurses what was going on and she went to check. I heard the head nurse tell her that they wanted me to continue with the treatment and to go ahead and start me. After some time had passed (they still hadn't started me), the head nurse came over to me and said that the drug company screwed up and that my medicine wasn't there. She said I needed to stay another day and that my drugs would be there Thursday morning around 10:30. I'm a grown man but I'll admit that it took all of my strength to keep myself from crying. I re-emphasized how expensive these trips are and said that they need to make sure my drugs are there before I fly out there. They should have verified that my drugs were there on Tuesday knowing that I would be there Wednesday for treatment.

I was there for about another 2 hours before we finally got everything settled. The drug company agreed to pay for the additional night at the hotel, the additional day of the rental car, and the cost of changing my flight. The only thing I don't get back is the extra day away from my family. What else could I do, so I got out of there and went back to my hotel. Luckily I was able to get my room back and then I spent the next hour changing my flight and rental car reservations. I also had to call the guy in Tucson who was interested in buying the FJ40 to cancel on him as well. I was supposed to meet him on Thursday so they could have the emissions test done. Now it looks like I may have lost him as a buyer as well.

I went in Thursday morning a little early to make sure that they got me started on time so I could make my flight. Everything went pretty smoothly. I was hoping to get done in time to make an earlier flight (since they paid to change the ticket, my ticket became a normal ticket so it could be changed again without a fee). They finished up and said I was good to go. I still had time to make the earlier flight. I made a quick trip to the bathroom and when I came out I heard them say "oh, there he is". AARGHH! .... NOW WHAT? They told me that I need to stick around because they needed to do another EKG. I asked why and they said that when they examined me earlier I had an irregular heartbeat and to be safe they needed to do it. Both of the examine rooms had patients in them so I had to wait until a room was free. My chances of getting on the earlier flight were diminishing. They finally got me in and did the EKG and I got out of there as quickly as I could. I made it to the gate of the earlier flight with 20 minutes to spare. Luckily the flight was pretty empty so I got a good window seat.

Hopefully the next round will go smoothly. I'll be doing day trips every other week from now on. I'll be sure to leave enough time between my flights in event of delays.

Thanks again for all the prayers, please keep on praying.

-Josh

 

[4alarm]

I would like to thank everyone for donating or offering to donate their airline miles to me. It is a tremendous help to my family.

I'm also continuously overwhelmed with all the thoughts and prayers. There are so many caring people out there and I am proud to call you each my friend.

-Josh

 

[89s rule]

Hang in there man, remember who is truly in control and I hope that everything works out well for you as well as your family and friends dealing with all of this.

 

[Tapage]

I re-emphasized how expensive these trips are and said that they need to make sure my drugs are there before I fly out there.

I thhought those things only happend here in Panamá ..

The drug company agreed to pay for the additional night at the hotel, the additional day of the rental car, and the cost of changing my flight.

well this part nehver gonna happend in the same situation here .. so I feel you are in control, keep the good Job .. the buyer sure will come back or another and you will see the light ..