Tapage
Club 4X4 Panamá
Glad to ear that you are better ( fine ) now .. I'm reading in wikipedia about your disease very rare ..
Builds Project ToyLET (PICS)
- Thread starter 4alarm
- Start date
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Hang in man. My Mother-in-law was given the six month deal three years ago and she still watches the grand kids today.
Good luck
Good luck
I have spare fj60 and 62 tanks that are in good shape you are more than welcome to. Have fun out there man....
-Al
- Thread starter
- #144
Thanks, I'll let you know on the gas tanks.
Looks like I'll be back in the hospital Friday or Monday. I have a tumor in my pelvis that decided to block off my rectum. Now I get a colostomy. 4-5 more days in the hospital and I get to start my recovery all over again. Oh well, I guess it's for the best. Wish me luck!
Looks like I'll be back in the hospital Friday or Monday. I have a tumor in my pelvis that decided to block off my rectum. Now I get a colostomy. 4-5 more days in the hospital and I get to start my recovery all over again. Oh well, I guess it's for the best. Wish me luck!
- Thread starter
- #145
I've been told I'm 1 of only about 200 (globally) to ever be diagnosed with type of cancer. I guess I just can't be ordinary.
Tapage
Club 4X4 Panamá
stay strong. prayers and thoughts go out to you and your family
read up on the AZ wheelers site. Things are coming along
Bump.
How you doin 4alarm?
How you doin 4alarm?
He hasnt been on here since September. I hope all is well.
- Thread starter
- #152
Hey guys, sorry for not posting in a while. I've been here, just haven't been logging in. I didn't realize this thread had new posts.
So here's the update: I wasn't doing to well up until a few weeks ago. The chemo they had me on wasn't working and my tumors more than tripled in size. Doctor told me to get my affairs in order and that he didn't expect me to last more than 6 weeks. He suggested that I strongly consider whether or not I should keep fighting. Of course I couldn't give up so he started me on what he called the B-52 of treatments. Basically 3 high dose drugs administered over 5 days. Problem was that I had to be hospitalized through the treatment so they could monitor me and swap out the drugs. I HATE HOSPITALS! I've been in and out of the hospital every month since July. Anyways, the new treatment seems to be working. The doctor did a physical exam of my tumors and says they've shrunk. I can tell too. I have a CT scan next week to confirm it. He said that since I'm doing so well with the treatments that he'll let me do the next round of treatments out-patient. I'll have to spend each day at the cancer center but I'll get to go "home" each night with a pump. I drive 75 miles to Tucson for my treatments so the doctor says I have to stay in Tucson during my treatment in case of complications. I have family and friends there so no big deal I'll stay with them to avoid the hospital. This will be my 3rd round of this treatment. Doc doesn't want me doing more than 4 (really hard on the heart). After that he wants me to try a clinical trial that has worked really well with Ewings Sarcoma patients (similar to DSRCT).
I'm feeling much better. For a while there I had a really hard time walking. I can finally walk at a normal pace again. I'm down 53 pounds. I was 133 last week. I've been up around 138 the past few days (skeletal). I'm finally able to eat again so I hope I'll get some weight back soon.
The cruiser: It's up in Tucson at my friends house where he's just about done with the cage. Hydro-assist steering, exhaust, and some odds and ends and it should be ready for the trail. Hopefully by then I'll be ready.
Thanks for your thoughts and prayers. It's working. God is giving me a miracle.
So here's the update: I wasn't doing to well up until a few weeks ago. The chemo they had me on wasn't working and my tumors more than tripled in size. Doctor told me to get my affairs in order and that he didn't expect me to last more than 6 weeks. He suggested that I strongly consider whether or not I should keep fighting. Of course I couldn't give up so he started me on what he called the B-52 of treatments. Basically 3 high dose drugs administered over 5 days. Problem was that I had to be hospitalized through the treatment so they could monitor me and swap out the drugs. I HATE HOSPITALS! I've been in and out of the hospital every month since July. Anyways, the new treatment seems to be working. The doctor did a physical exam of my tumors and says they've shrunk. I can tell too. I have a CT scan next week to confirm it. He said that since I'm doing so well with the treatments that he'll let me do the next round of treatments out-patient. I'll have to spend each day at the cancer center but I'll get to go "home" each night with a pump. I drive 75 miles to Tucson for my treatments so the doctor says I have to stay in Tucson during my treatment in case of complications. I have family and friends there so no big deal I'll stay with them to avoid the hospital. This will be my 3rd round of this treatment. Doc doesn't want me doing more than 4 (really hard on the heart). After that he wants me to try a clinical trial that has worked really well with Ewings Sarcoma patients (similar to DSRCT).
I'm feeling much better. For a while there I had a really hard time walking. I can finally walk at a normal pace again. I'm down 53 pounds. I was 133 last week. I've been up around 138 the past few days (skeletal). I'm finally able to eat again so I hope I'll get some weight back soon.
The cruiser: It's up in Tucson at my friends house where he's just about done with the cage. Hydro-assist steering, exhaust, and some odds and ends and it should be ready for the trail. Hopefully by then I'll be ready.
Thanks for your thoughts and prayers. It's working. God is giving me a miracle.
Ive been keeping up on the AZ board, but you have to let us MUdders know whats up too 
Keep fighting bud.
Clay Parrish
Keep fighting bud. Clay Parrish
Good to hear you are doing better. Keep strong. Your positive out look has and will make a world of difference. Let us know if you need any parts...
Keep up the fight. Your condition has been on my mind and in my prayers since I first read about it. Take care!
1973Guppie
Supporting Vendor
way to fight!, get better, best wishes....
- Thread starter
- #158
Not such good news today. I had my latest CT scan yesterday and my follow-up appointment today. There has been some growth since my last scan so they are stopping my current treatment. Next step is to fly out to California (Santa Monica) to meet with a doctor there that is doing a clinical trial (IGF1R). I have an appointment on Monday so we'll be flying or driving on Sunday. Hopefully I can start the treatment on Monday. I'll have to do this every 3 weeks. The nice thing about this is that it's not like chemo. It's a shot that only attacks a certain part of the cancer cells. That means that the rest of my "good" cells won't be effected. So hopefully my hair will start growing back and I won't need anymore blood transfusions. I've had 3 transfusions since my last treatment. I don't think I have any of my own blood left.
On a brighter note here are some updated pics of the FJ40:
On a brighter note here are some updated pics of the FJ40:
So hopefully my hair will start growing back and I won't need anymore blood transfusions.
On a brighter note here are some updated pics of the FJ40:
Hair is overrated! Bald is beautiful . . . so I tell my wife
The 40 has a good stance.
Hang in there.
Tapage
Club 4X4 Panamá
Keep the positive track Josh .. !
The 40 get the right way ..
The 40 get the right way ..