Bad News

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Joined
Jan 2, 2005
Threads
278
Messages
2,065
Location
CouleeDamWA, BoiseID
I really dont want to get into to much but about three months ago I started to have some heavy seizure activity. It is unexpected as my family does not have a history of seizure disorders. I do have several head injuries both as a child and in the military. One such injury I took a piece of metal to the back of my head which went thru my skull. I am now on three types of anti-seizure meds. I am not allowed to drive until they get a handle of this and then the clock starts when they get a handle on the problem not when the problem started. I no longer have a divers license. When I do get it back I am not allowed to do any enjoyable off-roading or even be alone (which is about 90% of my wheeling). I am not a person that can just drive on a flat dirt road. I have to have something interesting to tackle. As for now I am looking at a good year. I am also not allowed to weld, manufacture, upgrade, modify anything for my FJ55. In other words I would have to farm it all out and then have someone put it all together for me. I have turned into a worthless lump. I do have to confess it is driving me absolutely crazy and I have gone into the garage against the orders of my doctor and my wife to work on some light projects that do not require welding, grinding, etc. My wife caught me and she was not happy. I have already had needles poked in every portion of my arms and hands as well as cat scans and MRI/MRA, EEG, etc... The cause is unknown...

With all that said I really do not know what to do. I feel like a mental retarded person being baby sat at all hours of the day and night. I have been released from work [don't worry I am a federal employee so I can return when this all is over]. My wife was fired from her job because she was spending to much time taking care of me... life really phucking sucks right now. I am thinking about selling all my land cruiser stuff as it just depresses me having it taunt me sitting out in the garage.

Anyway I don't know what road to take and this is depressing the hell out of me. If I do sale everything it isnt going to be for 500 bucks like I was offered some time ago. Remember I have been doing this for several years so I am not some po-dunk backwoods character with an FJ55 sitting in my field or on the side of my house. I understand wanting a good deal,, or even scoring a steal and having bragging rights... it isn't going to happen with me. I am fair and reasonable but Im not going to be a$$ raped. Sorry for being so darn harsh I just grow tired of tire kickers making lame offers.
 
Damn Dude; that sux.......:frown:wish there was something I could do to help! from you you are telling; the docs have run all the tests and still don't know what is causing the seizures?; are they what they call gran mal?

Lou
 
What sux even more are these meds... feels like Im being poisoned to death. Plus I now write many of my words backwards or a sentence takes forever and some words might be in german (had 4 years of german in high school and college), and the room always feels like it is spinning or the earths gravity field some how has lost its grip on me and im going to float off into space... ive had only one grand mal that we know of... the rest are partial/complex seizures that have been happening over and over again everyday for the past few weeks. Auras last for days and smell like burning human bone and flesh and thats only one of the fun filled symptoms. I've had an MRI from the belly button up with no bad signs of tumors, etc... even where the metal went into my head shows no brain damage.
One good thing about being a Disabled War Veteran and Federal Employee are this doesn't cost me anything except a copay.

I'd rather be normal and able to work on my pig and go wheeling.
 
Hang in there Mini, you have our best wishes! Try to be patient and give it time. You'll be weaned off the meds in time once they find a dose for maintenance. Keep the pig and keep the dreams alive, it and your family will give you a purpose.

Good luck
Jeff
 
Do not sell your cruisers/stuff. Depending on what is up, you very well may be back to doing things you want to.......sooner than you think.

:cheers:
 
Agree totally......wish I was a bit closer dude would be a pleasure to turn a wrench or two with you.....hell even give welding a go!.............yep, understand about the burning smell; somethings time just can't erase can it ?............hang on to the:princess:and the kids and keep the pig;

Lou
 
Mini, just had an:idea: pilots who lose their medical clearance can still fly with a check pilot ....anything wrong with wheeling with a copilot?.....planes have dual controls I know but hmmmmm just thinking how to get you out for some R&R on the trails hang in there Mini!

Lou
 
sorry to hear about your situation, but it doesnt mean your life is over. SImilar thing happened to one of my coworkers husband. He started having seizures, couldnt drive by himself anymore (had to commute 1hr+) to get to the construction site. Then had to carpool with his wife, then he got a hotel by his development, now he lost his job.

You should tell your wife to look at the Family Medical Leave Act, it allows spouses/family members to take time off to care for someone without losing their job. The time might be without pay, or a portion might be without pay, but you still have a job.
 
Hey guys.. thanks for the support. I wasnt sure what to do about my cruiser at this time. I don't need the money. It really depresses me to see it siting there in the garage and I cant even work on it let alone be in the garage alone. Mostly because my wife knows me well enough to know I will try and do something on my project.

I wont lose my job. Im a federal employee and a disabled veteran. I have a union standing behind me as well as the DAV. Fact is work is turning over backwards trying to help me out.

My wife tried the family medical leave act. She was fired after trying to get it. They said she had already taken to much time off and it was to late to ask for it. So her job now is to watch over me. My union rep is behind her and is helping her go to the state labor board to file legal action against them.

Copilot... if anything I would be the copilot.. :popcorn: I can ride shotgun. Not sure when I am going to be ready to drive on my own out in the trails.

well I need to rest now... am unsure how long it took me to write this much or if any of it makes much sense. thanks again.
 
Minipigg, I was wondering if you knew a ham radio guy there in town, he spends time in Germany. my dad bought ham equipment from him. My hopes go out to you and your people. Sounds like you have the best care, they'll get to the bottom of it, set you right. Pig in the garage, whats' the hurry? let her sit, motivation to get better. No need to tell a guy from Wyo to hang in there cause I bet you have that covered.
 
:idea:Mini, it shows that you want to be fiddling with things in the garage...........wife is at home but she won't let you be by yourself in the garage.what about a video monitor?.....it is R&R for you :)

Lou
 
best wishes to you and sorry to hear of your health issues, on your wife: get a good lawyer, sounds like here employer broke the law, period, sounds like they did know what they hell they were talking about, which more than often is the case, some employers think they can do whatever the hell they want, get a lawyer and fight.

Noah
 
Best of luck! Get well soon!!
 
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