Fragile X

[wct49]

Hey Guys!

Some of you know that both my girls (Michaela & Piper) suffer from Fragile X a genetic disorder that in girls gives them learning disabilities and effects their motor skills. In boys in effects them worse.
As with anything that effects your children it is very hard some days to deal with.

Right now the US senate is working on legislation to fund more research on Fragile X. But over the last few years that Debbie and I have been involved our Senators have yet to vote for funding.

I am asking Cottonlanders to follow this link that will send a email to our senators and maybe this year they will vote for it.

http://www.congressweb.com/entry.cfm?orgcode=nfxf&issue=12

It takes all of 5 minutes to fill out, Basically you put your info in and it already has a scripted letter attached.

This needs to be in their hands before 10 July.

For some of you that read this from out of state, you can do this also and the letter will be sent to your senators, maybe it will get another vote for this important research.


Thanks Guys I appreciate yall!


Chris Debbie Piper Michaela

 

[Clutchee]

Done deal...............

 

[LoneRanger]

done.

 

[Bodean]

You got it brother! Cute pic!!!!

Later,

 

[GulfShoresFJ60]

Done!

 

[Trained Killa]

Done.

 

[Sangamo]

Done!!

 

[Land Speeder]

Over Easy

 

[jesterb]

Thad and Trent are both friends of the family. I"ll get maw-in-law on it.

 

[77TLCFJ40]

Done!

 

[jofj40]

DONE

 

[chattfj40]

Done...to the Tennessee crackpots...

 

[HeathRJ]

ditto

 

[wmatthewt]

done...was not aware of fragile x before this. I am always eager to be educated.

 

[TroutBear]

logged on and filled out - "Done" was just getting repetitious

 

[wct49]

Thanks for all your letters to our US senators,

Now I ask for your help with our Representative (for many of us Chip Pickering)

Here is a link to the information about the legislation.

http://www.congressweb.com/Assets/HeaderFooter/NFXF/docs/Advocacy_Update_7-07.pdf


This legislation will not only help kids with FX but any other children with disabilities.
Please take a few minutes to fill in the blanks and send the letter.

Here is the link.
http://63.66.87.48/cweb4/index.cfm?orgcode=nfxf&hotissue=13

Thanks again guys for doing this for my girls and all the other kids out there.
Remember the only way Washington knows we care about something is if enough of us tell them.

Chris, Debbie, Michaela, Piper